The role of life context and self- defined well- being in the outcomes that matter to people with a diagnosis of schizophrenia

Abstract
Objective: Conduct a deep exploration of the outcomes that matter to people with a diagnosis of schizophrenia and understand from their perspective how these outcomes can be achieved.
Sample and Methods: In- depth qualitative interviews were conducted with 22 people with a diagnosis of schizophrenia. Interviews were analysed using thematic frameworks, and a realist informed theories of change approach.
Results: Our study revealed the potential causal relationships between the context of a person’s life, short- term goals and long- term outcomes. We provide a nuanced and detailed exploration of outcomes that matter for people with schizophrenia in relation to self-defined well-being. Achieving life milestones, feeling safe and outcomes related to improved physical health along with employment, a positive sense of self and psychosocial outcomes, were highly valued. For short- and long-term outcomes to be achieved, individuals required medication with minimal side-effects, cognitive behavioural therapy, family/social support and meaningful activities in their lives. Well being was influenced by life context and short- and long-term outcomes, but in a circular nature also framed what short- term goals could be achieved.
Conclusions: Working with people with a diagnosis of schizophrenia to identify and achieve better outcomes will necessitate a person- centred approach. This will require an appreciation of the relationship between the statutory and non-statutory resources that are available and a consideration of an individual’s current well-being status. This approach acknowledges personal strengths and encourages ownership of goals and supports self-management.
KEYWORDS
Goals, patient centred outcomes research, qualitative research, schizophrenia