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Exploring Patient Experiences of Using Long-term Prophylaxis for the Management of Hereditary Angioedema

Olaluyi, Sarah, BURTON, Amy and DEAN, Sarah (2025) Exploring Patient Experiences of Using Long-term Prophylaxis for the Management of Hereditary Angioedema. In: British Psychological Society 2025 Festival of Psychology in the Midlands, 8th September 2025, Birmingham.

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Official URL: https://www.bps.org.uk/event/2025-festival-psychol...

Abstract or description

Hereditary Angioedema (HAE) is a rare inherited disorder causing recurrent, painful swelling in various body parts. These episodes can disrupt daily life- affecting work, education, mental health, and quality of life. Effective disease management, including prophylactic treatment, is essential. However, patient experiences beyond clinical outcomes are underexplored . Clinical trials (e.g., lanadelumab and C1-INH) report improved quality of life and general health. Yet, how patients experience these treatments in day-to-day life is less understood. UK study: Found treatment barriers and psychological challenges. US study: Reported reduced anxiety and improved functioning with C1-INH. These findings show the importance of combining clinical data with patient perspectives. This qualitative study explores how patients experience long-term prophylaxis, focusing on perceived benefits, fears, practicality and challenges.

Item Type: Conference or Workshop Item (Poster)
Faculty: School of Life Sciences and Education > Psychology and Counselling
Event Title: British Psychological Society 2025 Festival of Psychology in the Midlands
Event Location: Birmingham
Event Dates: 8th September 2025
Depositing User: Amy BURTON
Date Deposited: 22 Sep 2025 11:11
Last Modified: 22 Sep 2025 11:11
URI: https://eprints.staffs.ac.uk/id/eprint/9210

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