Staffordshire University logo
STORE - Staffordshire Online Repository

What do we know about the experience of living with macular degeneration? A systematic review and meta-synthesis.

BENNION, Amy, Shaw, Rachel and Gibson, Jonathan (2012) What do we know about the experience of living with macular degeneration? A systematic review and meta-synthesis. Social Science and Medicine, 75 (6). pp. 976-85. ISSN 0277-9536

Full text not available from this repository.

Abstract or description

Age Related Macular Degeneration (AMD) is the leading cause of registerable blindness with a high
medical and societal cost burden. Much of the research examining experiences of living with AMD has
been conducted independently with small sample sizes and has failed to impact on practice. Metasynthesis
of qualitative research can improve the understanding of the experience of living with AMD
by drawing together findings of qualitative studies. This article presents a systematic review and metasynthesis
of qualitative studies investigating the experience of AMD (literature searched up to April 2012;
published studies identified range from 1996 to 2009). The review highlights themes relating to: functional
limitations, adaptation and independence; feelings about the future with vision impairment;
interaction with the health service; social engagement; disclosure; and the emotional impacts of living
with AMD. Attention to the experience of living with AMD can help us to better understand the needs of
patients. This meta-synthesis aimed to bring together the findings of qualitative research studies and
highlights important areas for consideration when caring for patients with AMD. Our findings suggest
that a holistic approach to service provision and support for AMD is needed which takes into account
individuals’ needs and experiences when coping with and adjusting to living with AMD. This support
should aim to reduce stigma, increase social engagement, and develop the psychological resources of
patients with AMD.

Item Type: Article
Faculty: Previous Faculty of Health Sciences > Psychology, Sport and Exercise
Depositing User: Amy BURTON
Date Deposited: 29 May 2013 10:59
Last Modified: 28 Jun 2018 12:40

Actions (login required)

View Item View Item

DisabledGo Staffordshire University is a recognised   Investor in People. Sustain Staffs
Legal | Freedom of Information | Site Map | Job Vacancies
Staffordshire University, College Road, Stoke-on-Trent, Staffordshire ST4 2DE t: +44 (0)1782 294000