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Tolerating uncertainty: Perceptions of the future for ageing parent-carers and their adult children with intellectual disabilities

Pryce, Laura and TWEED, Alison and PRIEST, Helena (2015) Tolerating uncertainty: Perceptions of the future for ageing parent-carers and their adult children with intellectual disabilities. Journal of Applied Research In Intellectual Disabilities. (In Press)

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Abstract or description

Background: Improved life expectancy means that more adults with Intellectual disabilities (ID) are now living with ageing parents. This study explored older families’ perceptions of the future.
Materials and Methods: Semi-structured interviews were conducted with nine older parents and three adults with ID and analysed to produce an explanatory thematic framework.
Findings: ‘Tolerating uncertainty’ was the major theme in participants’ attempts to manage anxieties about the future, encompassing sub themes of ‘accepting the parenting role’, ‘facing challenges’, ‘being supported/isolated’, ‘positive meaning making’, ‘re-evaluating as time moves on’ and ‘managing future thinking’. Some participants expressed preferences for their future which were in contrast to their parents’ views, and provide a unique perspective that has often been neglected in prior research.
Conclusions: This research has found commonalities in how families tolerate the uncertainty of the future, but also unique differences that require tailored interventions and prospective action by services

Item Type: Article
Subjects: C800 Psychology
Faculty: Previous Faculty of Health Sciences > Psychology, Sport and Exercise
Depositing User: Helena PRIEST
Date Deposited: 13 Oct 2015 09:09
Last Modified: 13 Oct 2015 09:09
URI: http://eprints.staffs.ac.uk/id/eprint/2175

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