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Impact of caring for someone with a rare rheumatic condition, views from patients and informal carers – the need for cat-like vigilance

MOONEY, Janice, Graham, Karly and Watts, Richard A (2019) Impact of caring for someone with a rare rheumatic condition, views from patients and informal carers – the need for cat-like vigilance. Rheumatology Advances in Practice. ISSN 2514-1775

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Abstract or description

ANCA-associated vasculitis (AAV) is a rare multisystem disease. Modern therapeutic protocols have turned AAV from an acute frequently fatal disease into a chronic disease requiring long-term immunosuppression. Patients must often manage substantial burdens related to chronic illness and treatment-related side effects, requiring help from informal carers. This study aimed to explore the experience of patients and of informal carers of patients with AAV about the impact of managing a rare rheumatic condition.

Item Type: Article
Faculty: School of Health and Social Care > Nursing
Depositing User: Library STORE team
Date Deposited: 07 Feb 2019 10:32
Last Modified: 15 Feb 2019 10:31
URI: http://eprints.staffs.ac.uk/id/eprint/5224

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