Staffordshire University logo
STORE - Staffordshire Online Repository

Supporting and sustaining care at home: experiences of adult daughters who support a parent with dementia to remain in their own home.

Smith, Gillian and Rodham, Karen (2021) Supporting and sustaining care at home: experiences of adult daughters who support a parent with dementia to remain in their own home. Health and Social Care in the Community. ISSN 1365-2524

This is the latest version of this item.

[img]
Preview
Text
hsc.13373.pdf - Publisher's typeset copy
Available under License Creative Commons Attribution 4.0 International (CC BY 4.0) .

Download (627kB) | Preview
[img] Text
Smith & Rodham Submitted_HSCC_clean.pdf - AUTHOR'S ACCEPTED Version (default)
Restricted to Repository staff only until 8 March 2022.
Available under License All Rights Reserved.

Download (932kB) | Request a copy

Abstract or description

Supporting a parent with dementia living in their own home is a challenging care issue which has potential for negative physical, emotional and psychosocial impacts. This research explores the experiences of adult daughters who sustain this arrangement as well as managing the competing demands of their lives. Using a qualitative approach, semi-structured interviews were conducted between March and October 2017. Eight adult females in the UK who were supporting a parent with dementia to remain living in their home were interviewed. Photo-elicitation was used as an aid to data collection and complemented the use of Thematic Analysis (TA) to analyse verbatim transcripts. Four themes were identified: (1) Impact on identity: impact of the participants’ experience on their sense of identity; (2) Continuity and change: relationship re-definition and duality of roles; (3) Stepping up to the challenge: adjustment to and coping with competing demands and ethical dilemmas; and (4) Finding help: “It’s just a minefield”: experiences of help-seeking and service provision. This study highlights the experiences and challenges for adult daughters who support a parent with dementia. Ethical dilemmas regarding autonomy and safeguarding concerns figure large along with the competing demands of multiple roles. Service providers should aim to be more proactive in offering timely practical and psychosocial support and guidance to avoid compassion fatigue and acknowledge the valuable unpaid service provided by these ‘women in the middle’.

Item Type: Article
Faculty: School of Life Sciences and Education > Psychology and Counselling
Depositing User: Karen RODHAM
Date Deposited: 09 Mar 2021 08:34
Last Modified: 12 Apr 2021 08:47
URI: http://eprints.staffs.ac.uk/id/eprint/6829

Available Versions of this Item

  • Supporting and sustaining care at home: experiences of adult daughters who support a parent with dementia to remain in their own home. (deposited 09 Mar 2021 08:34) [Currently Displayed]

Actions (login required)

View Item View Item

DisabledGo Staffordshire University is a recognised   Investor in People. Sustain Staffs
Legal | Freedom of Information | Site Map | Job Vacancies
Staffordshire University, College Road, Stoke-on-Trent, Staffordshire ST4 2DE t: +44 (0)1782 294000