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Sustaining relational subjectivity: the experience of women with dementia

TOLHURST, Edward, Weicht, Bernhard and Runacres, Jessica (2022) Sustaining relational subjectivity: the experience of women with dementia. Sociology Of Health & Illness. ISSN 1467-9566

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Abstract or description

The experience of dementia can only be understood adequately if the influence of gender is fully recognised. Research accounts have, however, tended to portray dementia in gender-neutral terms. This qualitative research study aims to redress this imbalance by investigating the gendered experience of women with dementia. The research addressed women’s negotiation of relationships with spousal partners, other family members, and professionals, support groups and services. The study included 10 mixed-sex spousal couples where the woman had been diagnosed with dementia. Women took part in semi-structured joint interviews alongside their partner. This research focuses on the responses provided by the women with dementia within these interviews. Four principal themes were identified within the data: upholding gendered subjectivities; the broader relational context; closer networks; and gendered care relationships. These themes elucidate the challenges women face in sustaining relational subjectivity via the spousal relationship and wider social associations, while also dealing with the cognitive impacts of dementia. The article concludes by highlighting that a more nuanced social scientific perspective of dementia is required that acknowledges the complexity of gendered experience. This can assist policymakers and practitioners to tailor support to meet the requirements of women with dementia.

Item Type: Article
Additional Information: This research received ethics approval from Staffordshire University on 16th August 2018. This is the peer reviewed version of the following article: Sustaining relational subjectivity: the experience of women with dementia, which has been published in final form at [Link to final article using the DOI]. This article may be used for non-commercial purposes in accordance with Wiley Terms and Conditions for Use of Self-Archived Versions. This article may not be enhanced, enriched or otherwise transformed into a derivative work, without express permission from Wiley or by statutory rights under applicable legislation. Copyright notices must not be removed, obscured or modified. The article must be linked to Wiley’s version of record on Wiley Online Library and any embedding, framing or otherwise making available the article or pages thereof by third parties from platforms, services and websites other than Wiley Online Library must be prohibited.
Uncontrolled Keywords: couplehood, dementia, gender, relational sociology, relationships
Faculty: School of Health and Social Care > Allied Health and Paramedic Science
Depositing User: Edward TOLHURST
Date Deposited: 05 Dec 2022 12:27
Last Modified: 24 Feb 2023 14:04
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