The Qualitative DIGNISPACE Study: The Co-Design of a Life Review, Meaning-Making and Legacy Leaving Digital Intervention for Young People with Life-Limiting Conditions

Rodriguez, Alison M, Kellehear, Allan, Lanfranchi, Vitaveska, MCSHERRY, Wilfred, Tatterton ,, Michael, Watts, Lucy, Yaziji, Nahel and Smith, Joanna (2023) The Qualitative DIGNISPACE Study: The Co-Design of a Life Review, Meaning-Making and Legacy Leaving Digital Intervention for Young People with Life-Limiting Conditions. Illness, Crisis & Loss. ISSN 1552-6968

Preview

Text Rodriguez et al 2023.pdf - Publisher's typeset copy Available under License Creative Commons Attribution 4.0 International (CC BY 4.0) . Download (569kB) | Preview

Abstract or description

Background: Young people with life-limiting conditions have unmet psycho-spiritual needs. Dignity Therapy is a psycho-therapeutic end-of-life intervention that addresses life review, meaning making and legacy leaving. Studies of Dignity Therapy including young people are limited.

Aim: To co-design a digital Dignity Therapy-based intervention for young people with life-limiting conditions (DIGNISPACE). Design: A qualitative study including focus groups (n=5) with hospice-based healthcare professionals (n=23), semi-structured interviews with young people with life-limiting conditions (n=13) and family carers (n=12). Data were analyzed using framework analysis.

Results: Three main themes were derived; intervention purpose, amendments to the Dignity Therapy question protocol and content for a digital application. Findings influenced the development of DIGNISPACE and a model of dignity in young people with life-limiting conditions.

Conclusions: DIGNISPACE addresses the psycho-spiritual needs of young people with life-limiting conditions, including tenets of the model of dignity in young people with life-limiting conditions in its content and delivery.

Item Type:	Article
Uncontrolled Keywords:	life-limiting conditions, young people, Dignity, qualitative, digital intervention
Faculty:	School of Health and Social Care > Nursing and Midwifery
Depositing User:	Wilfred MCSHERRY
Date Deposited:	20 Oct 2023 15:59
Last Modified:	20 Oct 2023 15:59
URI:	https://eprints.staffs.ac.uk/id/eprint/7935

Actions (login required)

View Item