Women’s Experiences of Living with Hereditary Angioedema: A Secondary Qualitative Analysis

Hereditary Angioedema (HAE) is a rare inherited disorder that causes potentially life-threatening episodes of swelling. For many women, hormonal factors can worsen symptoms, adding complexity to managing the condition. While previous research has focused on diagnostic challenges and clinical management of HAE, limited attention has been paid to how women navigate the condition within the context of their gendered roles and specific health needs. This study explores women’s experiences of living with HAE, focusing on how gendered roles, health needs, and social contexts influence symptom management, care experiences, and daily life.