Staffordshire University logo
STORE - Staffordshire Online Repository

Is living well with dementia a credible aspiration for spousal carers?

TOLHURST, Edward, Carey, Malcolm, Weicht, Bernhard and KINGSTON, Paul (2018) Is living well with dementia a credible aspiration for spousal carers? Health Sociology Review. (In Press)

This is the latest version of this item.

[img] Text
Living well with dementia paper - accepted version.docx - AUTHOR'S ACCEPTED Version (default)
Restricted to Repository staff only until 3 May 2019.
Available under License All Rights Reserved (Under Embargo).

Download (64kB) | Request a copy

Abstract or description

In England there has been substantial policy development and an academic drive to promote the goal of ‘living well’ for people with dementia and their family members. This article critically evaluates the feasibility of this intention, with reference to the experience of those caring for people with the condition. Qualitative data are utilised from a study which explored how couples negotiate relationships and care. The focus of this paper is the perspectives of spousal carers and the challenges they encounter within their caring role. Views were obtained via semi-structured joint interviews where the carer participated alongside the person with dementia. The extent to which living well with dementia is a credible aspiration for carers is examined via three themes: identity subsumed under care responsibilities; the couple as an isolated family unit; and barriers to professional support. The findings highlight that experience of caring is highly complex and fraught with multiple practical, emotional and moral pressures. It is asserted that research into dementia and care relationships must avoid a zero sum situation, prompted by living well discourses, where attempts to bolster the position of people with dementia compound the marginalisation and stigmatisation of informal carers.

Item Type: Article
Uncontrolled Keywords: care; couplehood; dementia; intergenerational relationships; spousal relationships
Faculty: School of Health and Social Care > Social Work and Social Welfare
Depositing User: Edward TOLHURST
Date Deposited: 08 May 2018 10:54
Last Modified: 08 May 2018 10:54
URI: http://eprints.staffs.ac.uk/id/eprint/4399

Available Versions of this Item

  • Is living well with dementia a credible aspiration for spousal carers? (deposited 08 May 2018 10:54) [Currently Displayed]

Actions (login required)

View Item View Item

DisabledGo Staffordshire University is a recognised   Investor in People. Sustain Staffs
Legal | Freedom of Information | Site Map | Job Vacancies
Staffordshire University, College Road, Stoke-on-Trent, Staffordshire ST4 2DE t: +44 (0)1782 294000